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Table 2 Patient demographics and comorbidities

From: Insights from the European Nontuberculous mycobacterial pulmonary disease PAtient Disease Experience (ENPADE) survey– exploring disease burden and impact

 

United Kingdom

Germany

Italy

France

Spain

Belgium

Netherlands

Austria

Total

Gender % (n)

         

Female

70.8% (46)

79.2% (57)

62.3% (33)

90.9% (30)

63.6% (7)

63.2% (12)

72.7% (8)

50.0% (2)

72.8% (195)

Male

26.2% (17)

15.3% (11)

32.1% (17)

9.1% (3)

9.1% (1)

36.8% (7)

18.2% (2)

50.0% (2)

22.4% (60)

Prefer not to answer

3.1% (2)

5.6% (4)

5.7% (3)

0.0% (0)

27.3% (3)

0.0% (0)

9.1% (1)

0.0% (0)

4.9% (13)

Education % (n)

         

No schooling completed

4.6% (3)

4.2% (3)

0.0% (0)

0.0% (0)

9.1% (1)

0.0% (0)

0.0% (0)

0.0% (0)

2.6% (7)

Primary education (4–11 years)

3.1% (2)

5.6% (4)

0.0% (0)

3.0% (1)

9.1% (1)

0.0% (0)

9.1% (1)

0.0% (0)

3.4% (9)

Secondary education (11–16/18 years)

23.1% (15)

38.9% (28)

30.2% (16)

12.1% (4)

18.2% (2)

31.6% (6)

27.3% (3)

50.0% (2)

28.4% (76)

Further education (vocational qualification, 16–18 years)

29.2% (19)

20.8% (15)

24.5% (13)

18.2% (6)

36,4% (4)

21.1% (4)

9.1% (1)

25.0% (1)

23.5% (63)

Undergraduate higher education (e.g. BA, Bsc)

20.0% (13)

12.5% (9)

13.2% (7)

36.4% (12)

9.1% (1)

31.6% (6)

36.4% (4)

0.0% (0)

19.4% (52)

Postgraduate higher education (e.g. Masters, PhD)

13.8% (9)

12.5% (9)

30.2% (16)

27.3% (9)

18.2% (2)

5.3% (1)

9.1% (1)

25.0% (1)

17.9% (48)

Prefer not to answer

6.2% (4)

5.6% (4)

1.9% (1)

3.0% (1)

0.0% (0)

10.5% (2)

9.1% (1)

0.0% (0)

4.9% (13)

Comorbidities

         

COPD

31.7% (39)

35.8% (44)

12.2% (15)

8.9% (11)

3.3% (4)

3.3% (4)

3.3% (4)

1.6% (2)

27.1% (123)

Bronchiectasis

16.8% (19)

15.0% (17)

35.4% (40)

8.8% (10)

6.2% (7)

10.6% (12)

6.2% (7)

0.9% (1)

24.9% (113)

Asthma

30.8% (16)

30.8% (16)

11.5% (6)

11.5% (6)

3.8% (2)

7.7% (4)

3.8% (2)

0.0% (0)

11.5% (52)

Impaired immune system*

18.4% (9)

32.7% (16)

26.5% (13)

6.1% (3)

6.1% (3)

8.2% (4)

2.0% (1)

0.0% (0)

10.8% (49)

Frequent pneumonia

11.4% (4)

37.1% (13)

17.1% (6)

8.6% (3)

5.7% (2)

5.7% (2)

14.3% (5)

0.0% (0)

7.7% (35)

Previous tuberculosis infection

25.0% (4)

18.8% (3)

31.3% (5)

0.0% (0)

6.3% (1)

18.8% (3)

0.0% (0)

0.0% (0)

3.5% (16)

Cystic Fibrosis (CF)

33.3% (4)

8.3% (1)

16.7% (2)

25.0% (3)

8.3% (1)

0.0% (0)

0.0% (0)

8.3% (1)

2.6% (12)

Whooping cough

33.3% (2)

0.0% (0)

33.3% (2)

33.3% (2)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

1.3% (6)

Alpha 1 antitrypsin deficiency

20.0% (1)

60.0% (3)

20.0% (1)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

1.1% (5)

Ciliary Dyskinesia

50.0% (1)

50.0% (1)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.4% (2)

HIV-positive

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

0.0% (0)

Other**

14.6% (6)

26.8% (11)

19.5% (8)

22.0% (9)

9.8% (4)

7.3% (3)

0.0% (0)

0.0% (0)

9.0% (41)

  1. This table presents two distinct types of data. The percentages and numbers for ‘Gender’ and “Education level’ represent the distribution amount the patient population studied. The percentages and numbers for ‘Comorbidities’ represent reported events, not individual patients, as some patients may have multiple comorbidities. *Patients who chose “impaired immune system” specified overall different forms of arthritis (n = 5), forms of chronic inflammatory bowel disease (n = 4) and sarcoidosis (n = 2). **Patients who chose “Other” specified overall forms of cancer (n = 9), heart diseases (n = 5), emphysema and other changes of pulmonary structure (n = 9)