Table 3 Sample participant quotes about the 7-day symptom recall period for the SYMPACT-CP
Question | Timeframe/ease of recall | Illustrative quotes |
|---|---|---|
What exact period of time did you think about as you were selecting your answer? | “Last week” or “last 7 days" | 001–011/WHO FC II: “I went Tuesday to Tuesday. Previous Tuesday until yesterday.” INTERVIEWER: “You were thinking about the specific days of the week and working backwards with seven days.” 001–011/WHO FC II: “Yes.” |
001–009/WHO FC II: “I would have thought about exactly in the past 7 days, not like last week or something like that.” | ||
001–013/WHO FC III: “The day that I answered it, I thought about that day and 6 days prior, so for an entire week.” | ||
“Today” | 001–004/WHO FC II: “When I was looking at the answers, I was thinking about today.” | |
“Last few days” | 001–006/WHO FC III: “I was thinking about the last few days. Like over a period of 2 or 3 days before I was actually answering the questions.” | |
In general, how easy or difficult was it for you to remember your experience with these PAH symptoms over the past 7 days? | Easy or very easy | 001–007/WHO FC II: “Very easy. Because these symptoms are something that occur every day, all the time. It’s like you can’t have this disease and forget you have this disease.” |
001–009/WHO FC II: “…I would feel like it’s pretty easy. This is a disease that I live with every single day, and it impacts different things I do in different ways every single day, so whether I’m asking questions or not, I’m definitely thinking about it, and I definitely remember. You know, “I was really tired this day,” or “This day was really hard.” It’s pretty easy for me to remember those things.” | ||
001–013/WHO FC III: “It was easy. I was just coming back from a cruise. Walking around the ship, going out on excursions and stuff, I can remember what I couldn’t do and what I could do because of it, so it was pretty simple for me.” | ||
001–003/WHO FC II: “Very easy. Because I am at a higher elevation, I think I’m very aware.” | ||
Difficult | 001–002/WHO FC II: “Honestly, pretty hard. Thankfully, I’m still a busy person, so for me to go back 7 days is pretty hard. So I just kind of tried my best to kind of put everything together and answer the questions.” |